Adult Changes in Thought Study

Work with Us

There are several options for collaborating with the Adult Changes in Thought (ACT) Study and accessing ACT data. You can identify the approach that is right for you based on the needs of your research question and the availability of appropriate financial, staffing, and data resources. If you’re not sure, or are considering an option that would involve ongoing or direct collaboration, please reach out to the ACT Study using our Contact Us form to determine next steps. The figure below describes these options at a high level along with next steps to get started for each.

Pre-Existing Curated Data Sets

In process

ACT is working to develop a set of go-to curated datasets that feature some of the most frequently requested ACT data elements.

Where to start: Once available, complete a proposal request form to submit your request.

Customized Datasets

Available upon approval

When an existing curated dataset won't answer your research question, you can request a customized dataset to meet your research needs.

Where to start: Complete a proposal request form. Depending on complexity, funding for ACT staff may be required.

Grant Collaborations — Secondary Data Analysis

Available upon approval and funding

Use this approach if you plan to submit a grant proposal that would use existing ACT data and/or analytic resources to meet proposed grant aims (through one or more custom datasets).

Where to start: Review the ACT Ancillary Study Policy and reach out to an ACT investigator in your area of interest to discuss feasibility. 

Grant Collaborations — New Data Collection

Available upon approval and funding

If you plan to submit a grant proposal that would involve new data collection among ACT participants, this will require very close, ongoing, funded collaboration with ACT.

Where to start: Review the ACT Ancillary Study Policy. Then reach out to an ACT investigator working in your area of interest, who can guide you through feasibility assessment and next steps as appropriate.

The ACT Study collaboration process varies, depending on the type of collaboration that’s right for each project. For detailed policies and procedures for ACT Study collaboration and data sharing, see the Data Sharing Policies & Procedures section below. 

The figure below depicts an example of the collaboration process, from formulation of a new research question through publication of the final analysis findings, for a project proposing secondary data analysis of existing ACT data using existing funding (i.e., no new ancillary grant proposals - the most common collaboration option for external investigators). 

Helpful resources mentioned in the figure above:

Review ACT data resources and documentation.
Contact an ACT collaborator
Complete a proposal request form.

Review ACT P&P Committee Policies and deadlines. 

Review the ACT Collaborative Research Agreement & ACT Data Use Agreement (if external to KPWHRI) which will be required to conduct  research

Review the ACT Acknowledgement Guide.

Complete the ACT Manuscript Checklist when your manuscript is ready to submit. 

Request Data or Propose an Ancillary Grant

Want to request access to ACT data for a research question or manuscript? Download and complete an ACT Study data request form and email it to us

Interested in working with the ACT Study to submit a grant proposal using ACT data or resources? Review the ACT Ancillary Study Policy, and, when ready, complete an Ancillary Study Application Form and email the ACT Study to assess feasibility and submission timing. Be sure to copy your ACT collaborator on the message. 

Contact us if you have any other questions.

See the process below for an example process flow for a new grant proposal. As mentioned above, additional ACT review steps and approvals are required prior to grant submission. If the grant is funded, researchers will then follow a process similar to the one outlined above for each manuscript using ACT data stemming the grant.

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